Please use this identifier to cite or link to this item: https://hdl.handle.net/11000/31439
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dc.contributor.authorOrozco-Beltrán, Domingo-
dc.contributor.authorde Toro, Javier-
dc.contributor.authorGalindo, María J.-
dc.contributor.authorMarín‑Jiménez, Ignacio-
dc.contributor.authorCasellas, Francesc-
dc.contributor.authorFuster‑RuizdeApodaca, Maria J.-
dc.contributor.authorGarcía‑Vivar7, María L.-
dc.contributor.authorHormigo‑Pozo, Antonio-
dc.contributor.authorGuilabert, Mercedes-
dc.contributor.authorSánchez‑Vega, Nuria-
dc.contributor.authorFernandez, Gonzalo-
dc.contributor.authorCea-Calvo, Luis-
dc.contributor.otherDepartamentos de la UMH::Medicina Clínicaes_ES
dc.date.accessioned2024-02-12T11:44:04Z-
dc.date.available2024-02-12T11:44:04Z-
dc.date.created2018-
dc.identifier.citationThe Patient - Patient-Centered Outcomes Research (2019)es_ES
dc.identifier.issn1178-1661-
dc.identifier.urihttps://hdl.handle.net/11000/31439-
dc.description.abstractBackground Patient experience is acknowledged as a principal aspect of quality healthcare delivery, and it has implications with regard to outcomes. Objectives Our objective was to evaluate the healthcare experience of patients with chronic diseases to identify patientperceived healthcare gaps and to assess the infuence of demographic and healthcare-related variables on patient experiences. Methods A cross-sectional survey was delivered to adult patients with chronic diseases: diabetes mellitus (DM), human immunodefciency virus (HIV) infection, infammatory bowel disease (IBD) or rheumatic diseases. Patient experiences were assessed with the Instrument for Evaluation of the Experience of Chronic Patients (IEXPAC) questionnaire, with possible scores ranging from 0 (worst) to 10 (best experience). Results Of the 2474 patients handed the survey, 1618 returned it (response rate 65.4%). Patients identifed gaps in healthcare related mainly to access to reliable information and services, interaction with other patients and continuity of healthcare after hospital discharge. The mean±standard deviation (SD) IEXPAC score was 6.0±1.9 and was higher for patients with HIV (6.6±1.7) than for those with rheumatic disease (5.5±2.0), IBD (5.9±2.0) or DM (5.9±1.9) (p<0.001). In multivariate models, better overall IEXPAC experience was associated with follow-up by the same physician, follow-up by a nurse, receiving healthcare support from others and treatment with subcutaneous or intravenous drugs. The multivariate model that confrmed patients with HIV or DM had better experience than did those with rheumatic diseases. Conclusions Through IEXPAC, patients identifed aspects for healthcare quality improvements and circumstances associated with better experience, which may permit greater redirection of healthcare toward patient-centered goals while facilitating improvements in social care and long-term healthcare qualityes_ES
dc.formatapplication/pdfes_ES
dc.format.extent11es_ES
dc.language.isoenges_ES
dc.publisherSpringeres_ES
dc.rightsinfo:eu-repo/semantics/openAccesses_ES
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 Internacional*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.subject.otherCDU::6 - Ciencias aplicadas::61 - Medicinaes_ES
dc.titleHealthcare Experience and their Relationship with Demographic, Disease and Healthcare‑Related Variables: A Cross‑Sectional Survey of Patients with Chronic Diseases Using the IEXPAC Scalees_ES
dc.typeinfo:eu-repo/semantics/articlees_ES
dc.relation.publisherversionhttps://doi.org/10.1007/s40271-018-0345-1es_ES
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